Everyone here is alright. I must admit that the news stories about the swine flu caught my attention. I am worried Grace will catch it and end up with pneumonia again. She has a sniffle right now and that it all. We are watching her VERY closely for any signs of things progressing. Yes, I am paranoid!
The girls are doing well. They seem to take turns waking up in the morning. One wakes up early and then 'helps' to wake the other. One morning Rita was very helpful and jumped on the bed Gracie was sleeping in. Grace just wanted to burrow under the covers and be left alone. The very next day, Rita was the sleeper and Grace was the helper. Grace decided to play doctor to Rita. It was quite amusing to watch Grace try to listen to Rita's heart with her stethascope while Rita was trying to dodge her ministrations. We would prefer that they both slept in once in a while and let us also sleep in - so far no luck!
We have not had our three-month visit with the ketogenic diet team. We are putting it off and off. Part of my reluctance is that I am not sure Grace is up to making the long-term commitment on the diet. Feeding her each day remains a struggle. She fights the heavy cream and oil. She refuses mayonnaise and butter which would at least help to add variety to her fat choices. Grace does not like the vitamin supplements and often spits them out. It is difficult to be sure that she is getting sufficient nutrition between the supplement issues and the not eating issues. We really want this diet to work. However, we don't envision 3 years of force feeding her to be a good thing. We continue to procrastinate.
Take Care and thanks for checking in!
Marie, Tom, Rita and Gracie!
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