Update on Grace

Just a quick update on the last few days. Grace is sick. She has had a few seizures over the last few days and she is running very high fevers. Friday night Grace spiked a fever of 104.5 while being o both Tylenol and Motrin. We took her to the Emergency Room. After spending the night in the ER, they transferred her to CHOP with a possible pneumonia (chest x-ray did not show it but symptoms indicated it), high fever and low oxygen saturation.

Tom went with Grace down to CHOP and I came home with Rita to take a nap and to pack up some things for the hospital - like the scale and some other things we need to support the diet. We did not think about this last night. For certain types of medicines, we are supposed to counter-balance the carb content with a fat. For instance, children's motrin has carbs for flavor. Grace is supposed to have a fat with that so that she stays in ketosis. We didn't bring any fats with us so she had to go all night without. The local hospital is not prepared to support kids on the diet like that. I'm not even sure that CHOP is prepared that way.

Rita is a trooper. We were going to drop her off at Tom's parents house last night but people are sick there and we didn't want any new germs coming home. The same is true for most people's homes that we would normally ask Rita to go. So, in the interest of containing the germs we currently have, Rita is trudging along from hospital to hospital. Thankfully, she looks at this as an adventure - and more playroom to explore. The promise of a McDonalds in the lobby holds great attraction as well !!

Well, I need to run. Rita is packing up some toys and coloring books for Grace as I type. The longer I type the bigger the pile grows.

Marie