It's Starting....

We just had a very amusing phone exchange...Rita had her first phone call from a boy! I did mention that she just turned six, didn't I??? This is very strange. It's a good thing he r father was not home yet. He told her she is not allowed to talk to boys until she is 30! Anyhow, the boy in question called and asked to talk to Rita. I gave her the phone. She handed it back to me to talk twice. Then the phone was returned to me to hang it up. Rita seemed quite pleased that this boy called her. I just don't know how I am going to break this to her father!

The girls are growing up so fast. Rita is now six and she has only 9 days of kindergarten left! Gracie is three but she is now telling folks she is five. Sometimes she says she is three and five. Despite everything that has been going on with Gracie she is right about where we would expect her to be at three (almost three and a half).

Grace seems to have adjusted to her last medication shift quite nicely. She is noticably more alert and interactive with everyone. She is certainly more playful. We often wonder how much all of the medication represses Gracie. Since we would not dream if withholding her meds to find out, we can only guess. However, a few weeks now after dropping her dose of Depakote, we see more of her personality coming through. She is one funny kid!

Grace is now officially on the ketogenic diet at a 2:1 ration. The nutritionist determined that is her ratio since we started letting her eat unlimited protein. We were given a full meal plan at this ratio. We are no longer using the heavy cream option so she must have a syringe of oil with every meal but she gets more carbs and protein so she seems happy with it. The plan we are at now definately seems like something we can live with. It is much more portable and we are eating out again now.

Whatever we are doing, Grace seems to be responding well to it. On the home scale she is up to 28 pounds. This is a victory for us. She was 31 pounds before starting the diet but we were having trouble getting her over 26 pounds. We are also in the 90+ day range for seizure freedom! Another victory. We are awaiting the lab results to see if we need to add any additional suppliments. Her hair has thinned out a bit. We can deal with that. Hair is not so important in our house :-)

Thanks for checking in!