Monday, November 09, 2009

Hangin' with our friends at CHOP

Gracie is still here at CHOP. Once they got her fever down, it seems to be staying down. She is on TamiFlu for the flu; IV antibiotics for the bacterial infection; and a sedative to prevent additional seizures. Basically, she is under control. She is very tired and not very interested in food or drink. She is on IV fluids again tonight since she is not drinking enough.

Grace remembered the child life specialists here and perked up this afternoon to paint. She was so pleased to get to paint. It was great to see her wake up and play. The IV is in her right hand (and she is right-handed) so she had to paint with her left hand. Despite that, she thoroughly enjoyed painting!

This is the ketogenic diet initiation week at CHOP. It is ironic because the last time Gracie was inpatient, it was initiation week as well. Last time, Tom spoke to the other parents. If we stay, he may put in another cameo :-)

1 comment:

  1. Get well soon, dear Gracie!

    Lots of love and BIG hugs to you all!

    Maree :~D

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