Thursday, January 29, 2009

Check-up Time

Today was Grace's first out-patient check-up with the 'keto team'. Everything is fine. She has managed to put on a little bit of weight (about one pound) so everyone was happy with that. She has passed the one-month mark since her last seizure. It has been a long time since Grace went a month without a seizure. Needless to say, everyone is quite pleased with her progress thus far.

Grace is quickly getting tired of the food - especially the heavy cream which is a staple of every meal and snack! Last night I got out some food coloring and added a drop to her heavy cream pudding. Rita also had to have a pudding last night too. So, the girls sat together and devoured their colored puddings! Of course, the nutritionist saw one of the colored puddings today and asked what it was. Apparently food coloring has sugar alcohol so Grace is not supposed to have it. The nutritionist did recommend using some sugar-free Jello gelatin mix to add some color and flavor. They are deemed safe. We will try them out this weekend and see if Grace will eat it.

There were three other children all starting the diet the same time that Grace did. The parents all attended the classes together at the hospital and got to know each other a bit. Today at Grace's check-up, we met up with one of the other families. Their little girl is a beautiful child about to turn 4 in February. She has a smile that lights up a room. This sweet little girl was walking and talking until her seizures started at age two. When we met her in the hospital, she was unable to walk or talk. Her mother shared the incredible news with us that yesterday her daughter took three steps on her own. Talk about diet success stories! And this was not just a fluke. Today she took a single step on her own to show off for her grandmother! We are all cheering for continued success for this little girl!

This is week three of the diet and already the children are doing so much better! The diet is not without it's challenges. However, these results make it worth the battle! I think we were all pleasantly surprised at how well the children are doing with the diet.

Thanks for all of the love, support and prayers!
Marie, Tom, Rita and Gracie

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