I finally managed to get some pictures uploaded again today. There is one of the poster that Grace's day care class made to help decorate her room. Everyone who stops by is quite impressed!!

The other photos are of Grace trying to eat and one of her sleeping in the wagon. She has not been eating or drinking well so she is very, very tired. Grace did not eat her dinner last night nor the suppliments she was supposed to drink. She ate breakfast but not lunch. She is not drinking enough either. We have tried a lot of different things but she is not interested very much in 'keto fluids'. Grace wants hot chocolate or orange juice! These are definately not keto fluids!!

Grace had a low blood sugar this morning so she was given some apple juice - about as much juice as she would get if she was taking a syringe of tylenol or motrin!

They are getting ready to run a second IV to give her some fluids. She has one IV in that they are using for all of her blood draws. So that nothing happens to that, they are running another one for the fluids!

Grace also has too high a level of acid in her blood - acidosis I believe they called it. She is about to be given sodium bicarbonate to help neutralize the acids.

We are still scheduled to be discharged tomorrow but it is not a given. Grace needs to eat more and drink a lot more!!

Tom was getting clever with the heavy cream. He mixed orange extract, vanilla extract and liquid saccarine with the heavy cream and gave it a really good shake! It was like an orange creamsicle. Gracie didn't eat it today but she may enjoy it in the coming days and weeks!

All the best,

Marie, Tom and Gracie