Friday, January 16, 2009

Homeward Bound


Well Grace is doing well enough to get sprung. (This is an older picture but it reflects her mood - and a heavy cream mustache!)


She is on medicine to help with the acidosis. She likes it - at least she did last night! She will stay on this for a while to make sure that she doesn't have any problems.


Grace had IV fluids last night and this morning. However, we forgot to include some of the liquid foods as fluid so she is doing better than it seemed! It is very important that she stay hydrated on this diet. We need to keep pushing fluids with her.


Grace fell in love with the wagon they have here. She has taken to sleeping in it. We were discussing with her doctor this morning about how to hitch it to the back of the car to take home :-) When Grace wakes up, she likes getting pulled around the hospital in 'her' wagon!


The hospital has child life specialists here who are wonderful. There is an activity for each day and a playroom. One day Gracie painted pictures to music, another day, they colored, another day there was music therapy and so on. It has been a godsend for us as these activities keep her occupied while we are off to our classes. Today, the woman in charge of the program came around with little gifts for the kids going home. Grace was given a TY seal and a coloring packet.


I think Grace will be happy to head home today. When I walked in this morning she told me she wanted to see Rita. I had just dropped Rita off at school and had a similar conversation with her! I think the girls will be happy to be home together tonight!


Happy Friday!!

Marie

3 comments:

  1. Congratulations!!!!! Best of luck! Keep us updated!!

    Love,
    Charlie, Nicole, Donna, Vincent, Danielle, Crista, and all the other girls at just children!!

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  2. Tom , Marie ,Rita , Gracie ,
    Thinking of you Good luck

    Love Trudy

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  3. Hi Gracie and Family. I hope things start getting better and easier for you guys soon. I know you will get where you need to be sooner than anyone can imagine, for such a little girl you have enourmous strength. I miss having my little shadow asking me where I'm going and saying me come too? Helpng me with the lunch basket and most of all your hugs! I showed your friends your pictures on the computer, they miss you too! Keep in touch, xoxoxoxoxoxoxoxoxo Ms. Donna

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